| 翻訳と辞書 |
| Global Genes Project ： ウィキペディア英語版 |
Global Genes - Allies in Rare Disease
Global Genes - Allies in Rare Disease is a worldwide rare disease awareness movement designed around a denim jeans theme and a blue denim Genes Ribbon™, which like the pink ribbon for breast cancer, has become the unifying symbol of hope for people and families touched by rare diseases. Global Genes uses a simple concept of "jeans and genes" to broadly promote the needs of the rare disease community. The organization's mission is simple: to eliminate the challenges of rare disease. It does this through raising awareness, providing public and physician education, building community through social media, and funding research to find treatments and cures.
==History==
Started in 2009 by leading rare disease patient advocates, Global Genes has launched a number of innovative rare disease awareness campaigns including, Hope. It's In Our Genes™, Wear That You Care™, 7,000 Bracelets of Hope™, the Undiagnosed Patient Program, RARE Webinars™, RARE Meetups, the annual RARE Patient Advocacy Summit and the Tribute to Champions of Hope Gala to represent the 7,000 rare diseases and unite 1 Million For Rare. The organization has gained widespread recognition for its innovative campaigns and annual involvement in promoting Rare Disease Day.〔 〕
抄文引用元・出典: フリー百科事典『 ウィキペディア（Wikipedia）』
■ウィキペディアで「Global Genes - Allies in Rare Disease」の詳細全文を読む
スポンサード リンク
| 翻訳と辞書 : 翻訳のためのインターネットリソース |
Copyright(C) kotoba.ne.jp 1997-2016. All Rights Reserved.
|
|